These pages are written for you as a parent / guardian of a child who has SMA (for ease of reading, we have tended to refer to 'parents' throughout). They cover many of the wide range of topics you’re likely to come across as your child grows. They give you some basic information, provide you with links to other useful websites and organisations and include tips and experiences directly from families. If you find anything has changed, a link doesn’t work or would like to share your experience to help others, please do get in touch.
Please note: Living With SMA is still currently under development.