These pages are written for you as a teenager who has SMA and hopefully cover many of the topics that might be of interest. They give you some basic information, provide you with links to other useful websites and organisations and include tips and experiences directly from others. Many topics are ones that are likely to involve your parent(s) / guardian(s). For ease of reading we have often just referred to 'parents' in the text.
If you're a parent / guardian reading this, there may also be useful topics in the 'Children' section (e.g. Homes & Gardens) or the 'Adults' section.
If you find anything has changed, a link doesn’t work or would like to share your experience to help others, please do get in touch.
Please note: Living With SMA is still currently under development.